KickCancer's patients conference 2022.06.25

The reimbursement of drugs in paediatric oncology


Conference's presentations available here

1. Off Label use of drugs

9h30 Welcome

by Delphine Heenen

9h35 By the way, this treatment is not reimbursed. A patient’s view

by Eddy Vandezande

9h40 Off-label and on-label use of drugs: the Belgian landscape

by Barbara De Moerloose (paediatric oncologist from UZ Gent) & Tiene Bauters (hospital pharmacist from UZ Gent)

10h10 Who pays the bill? Belgian NGO's contribute to a broken system

by Ine Vanbuel (Tuki), Dierik van den Meerssche (KinderKankerfonds) & Ivan Staelens (Sun Child)

10h20 Who really needs those drugs?Ask the WHO! (and their list of essential drugs for paediatric cancers)

By Gilles Vassal & Maria Otth (SIOPE)

10h35 The administration’s requirements for the reimbursement of drugs in Belgium

by Kristel De Gauquier (

10h50 Panel discussion

11h30 Coffee break

2. Novel agents: reimbursement before approval

11h50 Medical Need & Compassionate Use programmes

by Olga Kholmanskikh (AFMPS/FAGG)

12h05 The perspective of the pharmaceutical industry

by Kristel De Gauquier (

12h20 Disruptive fundraising, money in the wrong pockets

by Ine Vanbuel (Tuki)

12h25 Panel discussion

12h50 Conclusion

13h00 End

13h00 – 13h30 Lunch

Practical information

Date: Saturday 25 June 2022, from 9.00 a.m. (reception) until 13.30 p.m. (light lunch)

Address: Brederodestraat 13, 1000 Bruxelles (The conference room is kindly offered by the lawfirm Linklaters)

Cure. Don’t cry