KickCancer's patients conference 2022.06.25

The reimbursement of drugs in paediatric oncology


1. Off Label use of drugs

9h30 Welcome

by Delphine Heenen

9h35 By the way, this treatment is not reimbursed. A patient’s view

by Eddy Vandezande

9h40 Off-label and on-label use of drugs: the Belgian landscape

by Barbara De Moerloose (paediatric oncologist from UZ Gent) & Tiene Bauters (hospital pharmacist from UZ Gent)

10h10 Who pays the bill? Belgian NGO's contribute to a broken system

by Ine Vanbuel (Tuki), Dierik van den Meerssche (KinderKankerfonds) & Ivan Staelens (Sun Child)

10h20 Who really needs those drugs?Ask the WHO! (and their list of essential drugs for paediatric cancers)

By Gilles Vassal & Maria Otth (SIOPE)

10h35 The administration’s requirements for the reimbursement of drugs in Belgium

by Kristel De Gauquier (

10h50 Panel discussion

11h30 Coffee break

2. Novel agents: reimbursement before approval

11h50 Medical Need & Compassionate Use programmes

by Olga Kholmanskikh (AFMPS/FAGG)

12h05 The perspective of the pharmaceutical industry

by Kristel De Gauquier (

12h20 Disruptive fundraising, money in the wrong pockets

by Ine Vanbuel (Tuki)

12h25 Panel discussion

12h50 Conclusion

13h00 End

13h00 – 13h30 Lunch

Practical information

Date: Saturday 25 June 2022, from 9.00 a.m. (reception) until 13.30 p.m. (light lunch)

Address: Brederodestraat 13, 1000 Bruxelles (The conference room is kindly offered by the lawfirm Linklaters)

Cure. Don’t cry